World Prematurity Day is November 17 Last Updated on Friday, November 15, 2013 Friday, November 15, 2013 The March of Dimes brings attention to prematurity with other organizations worldwide on World Prematurity Day. We partner with them to deliver information that impacts roughly 15 million babies worldwide—more than one in ten born each year. Preeclampsia is one of the leading causes of prematurity worldwide, accounting for approximately 15 percent of all premature births in the US alone. Please share this information, and help us make others more aware and supportive of our mission. Here are links to some articles that will update you on the statistics, concerns, advances, action items, and reasons for hope. Delivering action on preterm birth (The Lancet) Born too soon: Global action report (Save the Children, March of Dimes and World Health Organization) Join the conversation on November 17 (Healthy Newborn Network) World Prematurity Day Events (Maternal Health Task Force) US cannot brag about infant mortality rates (Preeclampsia Foundation) Prematurity means separation, medical complications, sometimes depression (Preeclamspia Foundation) From hope to joy (BabyCenter.com) Why do we need a world prematurity day (Impatient Optimists Blog – Bill & Melinda Gates Foundation) European Prematurity Group: Socks for Life campaign(European Foundation for the…Continue reading Preeclampsia Foundation News
Category: Preeclampsia and HELLP Syndrome
My Special Holdon Necklace
A few weeks ago I was perusing Pinterest and came across a necklace similar to this on my home screen. The necklace was highlighted for me because I follow the Preeclampsia Foundation and I had pinned a logo that was on one of their boards that was designed by Melissa Muir, preeclampsia survivor and Jewelry Designer. The logo was created for the Preeclampsia Survivor T-shirts, that are sold to raise public awareness about preeclampsia. Melissa is a 3-time preeclampsia survivor and had created a special necklace in honor of her daughter Kelsi. Kelsi was born at 24 weeks gestation and only lived for a couple of days. The wonderful and magical world of Pinterest, highlighted this necklace for me because of my previous pin of the logo. Seeing the image of her necklace had an immediate affect on me and I simply had to have one in honor of my son, Holdon. This began my connection to this amazing artist and the discovery of my preeclampsia sister, as she called us. Given our bond through this terrible condition of pregnancy, and the way she immediately opened her heart to me and shared her story, I realized we really are preeclampsia…Continue reading My Special Holdon Necklace
New test may predict preeclampsia odds in pregnant women – CBS News
Preeclampsia is a potentially dangerous complication facing pregnant women, but new research suggests an experimental test may be able to get ahead of the illness. Researchers at Kings College London say they’ve developed a new test that can predict which women will have the condition. Their findings were published Nov. 4 in the American Heart Association’s journal, Circulation. “The test is designed to differentiate women with preeclampsia from those with high blood pressure alone,” study author Dr. Lucy Chappell, a clinical senior lecturer in obstetrics at King’s College, said in a press release. “Current tests for the condition only detect that it’s happening, rather than predicting it, and by that time the disease has progressed and has likely already caused organ damage. Preeclampsia is a severe form of high blood pressure marked by excess protein in the urine. It affects about 8 to 10 percent of pregnant women in the U.S., according to the AHA. Symptoms that seem to occur with preeclampsia include persistent headaches, abdominal pain and blurred vision or light sensitivity. Click here to read more and view video
Preeclampsia Foundation News
Educational Conference Brought Controversies to the Forefront Preeclampsia is a complex disorder that often confounds even the most skilled clinicians, and there are very few postgraduate courses offered on this subject. One of the missions of the Preeclampsia Foundation is to fill this gap by facilitating healthcare provider education on the subject with the aim of improving health care practices. Almost every year since the inception of Saving Grace, the Foundation has sponsored a major continuing medical education event for healthcare providers in that region. Click to read more… (www.preeclampsia.org) Also check out: The Preeclampsia Registry (www.preeclampsiaregistry.org) The Preeclampsia Registry is a “Living Database” bringing together those affected, their family members, and researchers to advance knowledge and discover preventions and treatments for preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy. Preeclampsia Foundation Facebook Page © Preeclampsia Foundation 2013 | www.preeclampsia.org
Preeclampsia Foundation News
2013 Vision Grant Recipients to Study the Underlying Mechanisms of Preeclampsia $25,000 research grants will be presented to two preeclampsia research studies Melbourne, FL – September 12, 2013 – The Preeclampsia Foundation announced today that Ana Sofia Teixeira de Cerdeira, MD of the Harvard Medical School and Mandy Bell, PhD, RN of the University of Pittsburgh School of Nursing are recipients of its 2013 Vision Grants. Vision Grants are awarded to the strongest scientific proposals recommended by the Foundation’s scientific review committee with a further review by a consumer advisory board. The Foundation’s Board of Directors renders the final decision based on those recommendations. Preeclampsia is a major cause of maternal and fetal pregnancy related disease and death worldwide. Both recipients have the goal of better understanding the underlying mechanisms of the disease and translating their research findings to clinical application. Study #1 is working on the immune mechanisms (NK cells and Tregs) of regulation of placentation in health and preeclampsia. Study #2 is designed to clarify the role that soluble endoglin (sENG) plays in preeclampsia by investigating if differences in the genetic code of the endoglin gene and related genes account for increased sENG in women with preeclampsia. Click…Continue reading Preeclampsia Foundation News
Preeclampsia Foundation News
Screening Tests for Preeclampsia Preeclampsia Foundation News – August 16, 2013 If there were a way to learn your risk of developing preeclampsia in the first trimester of your pregnancy, would you want to know? What if that test result wasn’t 100% accurate? We asked almost 1,000 women – some who had had preeclampsia and some who had not – these and other questions to better understand patient preferences around the need for screening (or prediction) tests. Eighty-eight percent of women with a history of preeclampsia agreed that an early test was important, even if it was imperfect. Even those without a history of preeclampsia – 74% – still agreed it would be important. Click here to view more: Screening Tests for Preeclampsia (www.preeclampsia.org) © Preeclampsia Foundation 2013 | www.preeclampsia.org
Preeclampsia Foundation Introduces Illustrated Education Tool
On May 7th, 2013, the Preeclampsia Foundation introduced a new education tool to inform expectant mothers about the life-threatening disorder of pregnancy. This is a must read for anyone who is trying to become pregnant or currently pregnant. Preeclampsia Foundation Introduces Education Tool to Inform Expectant Mothers about Life-Threatening Disorder of Pregnancy Illustrated preeclampsia symptoms tear pad now available, already adopted by California healthcare initiative Melbourne, Fla. — May 7, 2013 /PRNewswire/ — The Preeclampsia Foundation today released the Illustrated Preeclampsia Symptoms Tear Pad, a patient education tool that was developed in collaboration with health services researchers at Northwestern University Feinberg School of Medicine in Chicago, Ill. The tool effectively informs pregnant women, even those with potentially poor literacy, about preeclampsia. Because preeclampsia is a disorder that can have grave consequences for a mother and her unborn baby, the goal is for the tool to offer information in a way that allows women to assimilate and retain knowledge related to preeclampsia, leading them to promptly seek medical attention should they have symptoms related to preeclampsia… To read more… Click Here or Click Here to see Multimedia Version © Preeclampsia Foundation 2013 | www.preeclampsia.org
Creating an Awareness About Preeclampsia and HELLP Syndrome
With the anniversary of Holdon’s death last weekend, I have been thinking a lot about my first pregnancy and the events leading up to my emergency c-section at 28 weeks. I was told I had a variant of Preeclampsia, called HELLP Syndrome and that I needed to deliver immediately or I could die. I had very little warning that I had this serious pregnancy complication. My only early symptom was upper abdominal pain, which I mistook for heartburn for weeks before finding out at a doctor’s appointment that I was seriously ill and had to deliver right away. Holdon was born, 3 months early and due to severe growth restriction as a result of a problem with the placenta, he was only the size of a 24-week-old baby, measuring only 1 lb 8 oz at birth. Holdon fought incredibly hard for 3 ½ months in the NICU but in the end it was too much for him. The official report from the doctor on his death certificate, said the cause was Cardiorespiratory Arrest, Multiple Systems Failure, Sepsis, and all a result of Prematurity. My doctor also believed the problem with the placenta is likely the cause of my Preeclampsia. We…Continue reading Creating an Awareness About Preeclampsia and HELLP Syndrome